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Book Title: The Diving Bell And The Butterfly|
The author of the book: Jean-Dominique Bauby
ISBN 13: 9781857027945
Format files: PDF
The size of the: 631 KB
Edition: Fourth Estate
Date of issue: 1998
City - Country: No data
Loaded: 2355 times
Reader ratings: 3.3
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‘Locked-in syndrome: paralysed from head to toe, the patient, his mind intact, is imprisoned inside his own body, unable to speak or move. In my case, blinking my left eyelid is my only means of communication.’
In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.
His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.
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Read information about the authorJean-Dominique Bauby was a well-known French journalist and author and editor of the French fashion magazine, ELLE.
On December 8, 1995 at the age of 43, Bauby suffered a massive stroke. When he woke up twenty days later, he found he was entirely speechless; he could only blink his left eyelid. This rare condition is called Locked-in Syndrome, a condition wherein the mental faculties are intact but the entire body is paralyzed. Bauby also lost 60 pounds in the first 20 weeks after his stroke.
Despite his condition, he wrote the book The Diving Bell and the Butterfly by blinking when the correct letter was reached by a person slowly reciting the alphabet over and over again. Bauby had to compose and edit the book entirely in his head, and convey it one letter at a time. To make dictation more efficient, Bauby had his interlocutor read from a special alphabet which consisted of the letters ordered in accordance with their frequency in the French language. The book was published in France in 1997. Bauby died just ten days later of pneumonia. He is buried in a family grave at the Père-Lachaise cemetery in Paris, France.
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